Those living with Hidradenitis Suppurativa (HS) can tell you that there is no cure. It does not ever just… go away. It’s painful. Unrelenting. You take it one day at a time and learn to live with it.
The men, women, and children living with this disease are some of the strongest people we know, and Tara decided that she wanted to do something for them. With the release of her latest book, The Hidden Plague, thousands of people have been able to read about Tara’s personal experience living with HS, have found out what causes the disease, and have been given a detailed action plan to put themselves into remission.
However, for every person that is able to purchase the book, there is someone who cannot. Medical bills pile up, there are rent checks to be paid, and food needs to be put on the table. Many people with HS are on disability, or have wasted money on gimmicky-cure scams in the past. We understand that sometimes, a book like The Hidden Plague is a luxury. Sometimes, it’s just not in the budget.
This deeply affected Tara. She spent one and a half years writing The Hidden Plague so that everyone could heal themselves – not so that the information would only be available to a few. In the desire to connect with every one of you, she offered five free copies of The Hidden Plague in exchange for your story — how you live with HS, and why this book could change your life. She didn’t even ask you to ‘like’ a single page, or make you subscribe to anything – just tell us why you need our help. But as Tara started reading your stories, she realized that it was close to impossible to choose just five of you. Every single one of your stories held so much pain, so much hope that she would have liked to have given everyone a copy, if it were possible. So, she chose ten winners instead.
Throughout this week, you will be able to read the stories of those ten people. We hope that they will impact you as much as they’ve impacted us.
I have been wishing I could read your book for what feels like a very long time. It looks absolutely fantastic and vitally informative. It was the first and one of the only books I have ever seen regarding Hidradenitis Suppurativa, and I was incredibly excited to see one existed. I am going to give you an idea of my situation. I hope you don’t mind it is rather long. I am 20 years old and attending the University of Central Missouri. I live with my mother, which is close to the college. I rely on my mother (who has always been a single parent) for most things in my life, and I hate to be an inconvenience to her, especially financially. Though if I weren’t able to live with her, I absolutely could not manage attending University at all. She is in a lot of debt, and often worries about losing our home. I am also landing myself in a lot of debt with school loans, but I’m desperately hoping it will pay off in the future. I’m aiming to get a career where I primarily do work from home. In the beginning of my college career in 2012 my HS was fairly manageable, though I did miss a lot of school due to mostly physical restrains of HS, though it certainly effects me phenomenally in mental ways as well. In High School I missed an incredible amount of school. College has been easier mostly due to the school days not being as long.
However, within the last year my HS has been spreading and becoming more intense. I registered with my school’s Office of Accessibility Services, and they allow me to miss classes without suffering consequences. Unfortunately, missing classes still effected my grades quite a lot. So, I turned to online classes last semester, which are sadly more expensive. Last year I also quit my first and only part time job primarily due to HS. If the job hadn’t required such long periods of physical labor I may have been alright…but finding a sedentary part time job with my very little experience often feels hopeless.
My latest financial stress is Health Insurance. It has recently gone up significantly, and my grandmother who was helping me by paying it before can no longer afford it. So, basically, I am a stressed college kid with absolutely no money to be spending on things other than college and necessary HS supplies and other health supplies.Thank you for reading this – and thank you so much for writing this book and everything else you have done for HS sufferers.
-Jewel, 20, Warrensburg, MO
I remember as a child my mom telling me of getting a cyst under her breast and it would be recurrent. The older I got, she also mentioned that she would get a few here and there on her bikini line/vaginal area. When my sister, who is 6 years older then me, started to get these cysts every once in a while, it just seemed normal for the women in our family.
My first cyst was in my mid-twenties. I had thought I had outrun this whole family cyst thing since my mom and sister were a lot younger when their first one started. At the time of that first cyst, my health was taking a really nasty turn and I was dealing with adrenal fatigue, anxiety, etc. Then….I got pregnant…I know, right?! That is when HS took off like gang busters!
That was almost 6 years ago and I cannot believe that 1 cyst on my bikini line has turned into about 15 cysts at a time in my vaginal area, rear end, and under my breast, in my hip areas. My norm is 10-15 at a time and it is so embarrassing and painful, as you well know. I also tend to start getting worried when my armpit itches thinking it as now progressed there too….what fear and misery. However, with all of my other health issues, this seemed to take a back seat. Yet, I have researched the heck out of everything, tried the antibiotics (no good), switched soaps, am now taking copious amounts of turmeric in a day which does help, changed my diet, am working on balancing out my hormones, taking supplements, etc. and I am still left reeling from this.
In June I was also diagnosed with Psoratic Arthritis which propelled me into starting the AIP diet. I am hoping this helps but constantly feel at a loss of information when it comes to HS. I feel like I have exhausted all avenues….
Then, I heard about your book! Holler! I am just desperate for insight and a guide path. I am one of those people that will make the necessary changes no matter how hard they seem, I’m strong willed like that! I just want to know what I need to do, how to do it and see if I can help cure a generational condition that I do not want my daughter to be plagued with.
I would love to just pull the trigger on getting it, but as you can imagine with multiple autoimmune issues, money flies out the window faster then it come in. It would be totally justified and well worth it I know, just not feasible. Without getting into our tragic little story, “small” blessings, like potentially getting a free copy of your book, go a really long way. I also believe that the benefit would stretch far beyond me, but also help my sister and mom. I am also one of those people who is not too embarrassed to share about HS because I know so many suffer in silence not knowing what is going on. I would love to loan out the book and frankly never see it on my book shelf (that is after I have read it) just knowing that someone else would be finding hope and answers too.
– Kacy, 33, Fountain Valley, CA
***If you already have a copy of The Hidden Plague, it would mean the world to us if you could review it here, on Amazon. Just because your story isn’t on PrimalGirl doesn’t mean that it shouldn’t be seen. Share how reading The Hidden Plague has changed your life!